CIDP Will Not Win was started by a bright, young boy who saw his mother fighting this disease and wanted to help all people with CIDP receive much needed treatment.
CIDP Will Not Win provides grants to those who need help with treatments for this rare disease. For more information and resources please contact us.
CIDP Will Not Win is a registered 501(c)3.
What is CIDP?
First, I will share with you the definition of CIDP and after that I will share what I see CIDP as being.
CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.
The incidence of new cases is estimated to be between 1.5 and 3.6 in a million people.
CIDP is caused by damage to the covering of the nerves, called myelin. It can start at any age and in both genders. Weakness occurs over two or more months.
CIDP is not self-limiting (with an end to the acute phase). Left untreated, 30% of CIDP patients will progress to wheelchair dependence. Early recognition and treatment can avoid a significant amount of disability.
Now, what I see. CIDP is horrible. All day you get electric shocks and pain throughout your body. Because you are in so much pain you get really bad headaches and you are really tired. Sometimes is hard for my mom to walk and some people are in wheelchairs because of this party pooper disease. When you get hurt your body over exaggerates and makes the pain worse so it takes you a lot longer to heal. When my mom tripped and hurt her ankle, it hurt all Summer long and it was only a sprain. Her ankle still hurts once in awhile. That is the curse of CIDP.